Today I had my very first AC chemo treatment. I am only scheduled for 4 treatments so I figured I could handle whatever came because I knew in my mind it would be short lived for me! After today, I feel like I can handle anything as today was a page out of horror novel.
My nurses were great, everything was going fine, but they had some trouble seating my needle in the port as it was “deep”. They gave me my anti-nausea meds and steroid and I mentioned it was burning. They checked it, drew back blood fine and said it might just be because the steroid was so thick and my port area was still very tender as I only had it in last week.
They double and tripled checked everything before starting the Adriamycin as it is so harsh and can burn your skin and veins if not administered correctly. When they first started it, I noticed there was an intense pressure, but it seemed to fade a bit and I didn’t think too much about it. Then about 3 minutes in, I told my hubby it was uncomfortable and I didn’t think it was supposed to be this way. Mind you he was looking at me and the port area and noticed nothing. He mentioned to nurse that I said it was uncomfortable.
She was helping the lady next to me put a portable pump on and said she would be right there. As she was wrapping up, I touched the area around my port and it had swollen up very large and turned red – in only another 2-3 minutes. I told Bill to get a nurse right then. The nurse standing next to me asked the other lady to sit down for a minute and she stepped over to me. The next thing I knew, they had seven nurses around me, had shut off the drip and had a very kind, but firm nurse injecting me with bicarbonate. I had about 13 shots and a booster through the port itself. Then they clamped me off, bandaged me up, put some ice on the swelling and sent me off to radiology at the hospital across the street to figure out what in the world was wrong.
By this time I already felt like I had been beaten to a pulp by the nurses trying to counter-act the Adriamycin in my system, and then I had to sit for another hour and half before anyone could push dye through my port and figure out what was wrong with it.
When I finally got back there, they determined that my port had flipped over and the nurses, by sheer luck had landed the needle in the cath part of my port so it gave a good blood return and made them falsely believe it was seated properly. The next step was to flip it back into position. Which I will spare you all the gory details, but suffice it to say they did it without anesthesia and now my breast is absolutely black and blue from all the pushing, pulling, pressing, shots, and general manipulation of my breast and shoulder. When they got the port back in the right place, they reset a new needle and sent me back to finish my treatment.
I had a wonderful nurse who stayed late to finish my treatment and help me out. She was totally awesome and I must say that the rest of the treatment went well. But honestly, after that I am thinking I can stomach the nausea as it can’t be worse than flipping your port without an incision or anesthesia.
I do want to comment on my doctor though. When he called to the hospital to find out what they had found, he was told I had not been taken back yet. He got boiling mad and got in his car and came to check on it himself. He stopped and spoke to me on the table and then again in the lobby as I was leaving. He came in and checked on me twice during the last two bags of treatment. He was so kind and compassionate. I really wasn’t expecting so much supervision. It was very comforting. And I am not sure yet what I will do, but I will find some way to personally thank my nurse for helping me through such a difficult time. I would not have made it without her!
We still have to see how I handle the after-effects, but for now: One down, three to go… maybe the rest will be better!